Quality of life and self-management of HIV


TUESDAY 8 NOVEMBER, 15:15 – 16:45

University of Amsterdam | ROOM REC-JK 1.90Invitation lecture Steve Russell 8 November.png

The Education and International Development research group (IS Academy)/ Governance of Inclusive Development (GID) organised a public lecture titledFinding meaning: self-management of HIV and quality of life among people taking antiretroviral therapy in Uganda” by Dr. Steve Russell (School of International Development, University of East Anglia, UK).

Why might a group of people living with HIV in Uganda, who are taking treatment and self-managing the condition, report higher quality of life than a community control group from the same community?  In this seminar Dr. Steve Russell first presented these counter-intuitive quantitative data, then focused on themes from qualitative illness narrative data also collected for the study which help explain why PLWH might be reporting higher levels of wellbeing. These findings about improved wellbeing and sense of agency among a group of marginalised people link to broader concepts of empowerment and inclusive development. Steve also presented parts of a documentary film and address themes such as access to health services, building positive relationships with health workers and peers, managing the illness, and new purpose and meaning in life after starting treatment.

Date and time: November 8, 2016 from 15.15-16.45.
Venue: JK1.90, Roeterseilandcampus University of Amsterdam (Valckenierstraat 65-67, Amsterdam)

Steve Russell (School of International Development, University of East Anglia, United Kingdom) is a social scientist with 16 years research experience on health and health policy-related issues, and on related questions of poverty, livelihoods, and policy implementation. His recent research focuses on social aspects of HIV and AIDS, and in particular people’s management of HIV as a chronic condition when taking antiretroviral therapy (ART). Using social and psychological frameworks, the research examines people’s adaptive strategies, their self-management, their work to rebuild lives and livelihoods, and to regain order and control.

Sumit Kane (KIT Royal Tropical Institute, Amsterdam) has worked as an HIV clinician in a major public hospital in Mumbai, India, a context where much of HIV related care was and remains a self-managed process. He currently works at KIT Royal Tropical Institute, Amsterdam where his research interests include trust relations in health services, and service provision experiences of frontline health workers.


For more information, please contact Marielle Le Mat, M.L.J.LeMat@Uva.nl